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犹他州淀粉样变项目

The 淀粉样变的程序 at University of Utah Health and 亨茨曼癌症研究所 是为数不多的吗 项目 in the United States specifically designed to treat 淀粉样变 and provide multi-specialty care at a single location.

Our team of doctors and other medical staff work together to form a customized and detailed plan to care for your unique needs. The goal of our 淀粉样变的程序 is to not only treat your disease, but to improve  your quality of life.

项目服务

Our staff will work with you to create a treatment plan that best suits your needs. 治疗 can include medications, lifestyle changes, chemotherapy, or, if needed, organ transplant.

服务

  • Comprehensive multi-disciplinary evaluation
  • 皮肤。, heart, kidney, and bone marrow biopsies
  • Advanced cardiac imaging with cardiac MRI, strain echocardiography and nuclear pyrophosphate scanning
  • Advanced tissue staining and analysis
  • Innovative treatment options including access to clinical research trials for AL and transthyretin 淀粉样变
  • Interventional options for treatment including stem cell, heart, kidney or liver transplantation
  • 基因检测和咨询
  • 金融咨询
  • 营养咨询

关于大发娱乐的项目

淀粉样变 is a complicated disorder that can affect multiple systems in your body:

  • 骨髓

  • 肾脏

  • 神经系统

  • 皮肤。

  • 胃肠道系统

Because 淀粉样变 is so complex, it is important to have a treatment plan specific to you. 在大发娱乐, you will be evaluated and seen by 淀粉样变 specialists from different disciplines. This will help our providers  better understand your individual needs.

大发娱乐的淀粉样变治疗团队 

Our team members are leading experts in 淀粉样变 and focus their time and energy in researching and treating the condition.

If you have AL 淀粉样变, a hematologist will coordinate your care. If you have ATTR 淀粉样变, a cardiologist will coordinate your care. You will also see other specialists as needed.

Our nurses  provide safe and comfortable care.他们 will help make sure you understand your disease, 你的治疗, and what you need to do to make living with 淀粉样变 manageable.

Our team of care coordinators and schedulers will help set up your visits in our clinic and in other areas you may need to go. 

You will also have access to a variety of professionals:

To help you and your loved ones cope with an 淀粉样变 diagnosis, we partner with local 淀粉样变性支持小组 大发娱乐提供情感支持.

Find an 淀粉样变 Specialist Near Me

Support For Amylodosis 病人 And Their Loved Ones

Find support and resource for 淀粉样变 patients and their loved ones

Why Choose University of Utah Health?

U of U Health has year-after-year exceptional rankings as offering the best health care in the nation. 这并不意外. We believe collaboration throughout our system — from physicians, 研究人员, 生物学家, and more — leads to the most imaginative care.

一起工作在一个丰富, diverse clinical environment means our discoveries have a direct impact on the health of our patients.U of U Health isn't satisfied with just offering health care. 大发娱乐要变换它.

临床试验

For more information about clinical trials, contact the Utah 淀粉样变 Nurses at 淀粉样变@hci.犹他州.edu.

CARDIO-TTRansform

A Study to Evaluate the Efficacy and Safety of AKCEA-TTR-LRx in Participants With Transthyretin-Mediated Amyloid Cardiomyopathy (ATTR CM)

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A Study to Evaluate the Efficacy and Safety of Daratumumab

in Combination With Cyclophosphamide, Bortezomib and Dexamethasone (CyBorD) Compared to CyBorD Alone in Newly Diagnosed Systemic Amyloid Light-chain (AL) 淀粉样变
 
 
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ATTR Expanded Access Program (EAP)

by Ionis for patients with Hereditary Transthyretin 淀粉样变 (hATTR) associated polyneuropathy
 
 
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认识大发娱乐的病人

The Intersection of Medical Neglect and Good Fortune

 劳伦斯·帕克, an associate dean in the Honors College at University of Utah, 我就知道有些不对劲. Tests confirmed he had heart hereditary 淀粉样变. 确诊后, he went from being a professor with a new job to a patient in need of a heart transplant.

读劳伦斯的故事

New 心 Saves 病人 With 淀粉样变

In 2017, 雷Groth, a competitive cross-country skier, 被诊断为淀粉样变, a very serious but rare heart condition that has no cure. Back then, there was no way to slow or stop the disease progression. Without a heart transplant, his condition would become life-threatening.

读雷的故事

大发娱乐

We want to help not just our patients, but the 淀粉样变 community. Feel free to contact us with any questions or advice:

  • 医生  Contact us for new patient referrals for advice on evaluating or managing all types 淀粉样变 patients
  • 病人  Contact us for information about all types of 淀粉样变 and treatment recommendations, information about our multidisciplinary program approach or to self-refer to our program for 淀粉样变 management
  • 其他人  Contact us for any information about 淀粉样变 or our program

For More Information, Call or Email Us:

莎拉·尼尔森

新的病人协调员
莎拉.nelsen@hci.犹他州.edu
801-213-5723